I am Sick of Endometriosis

I usually don't rant about myself, but here it goes. It seems as though my endometriosis is baaack. The pain from endometriosis (endo) can be extreme. Don't get me wrong any relief I get from this horrible disease is great and somehow I was pain free for about 5 or 6 months which I am extremely grateful for but for the past 2-3 years I have had to deal with excruciating pain. I have had trouble with endo since I was 19 yrs old. Over the past 13 years I have had a total of five surgeries with regards to endometriosis. The first one was to identify the endo. The second and third surgeries were to remove the endo using a technique called ablasion, or burning it out. The fourth surgery was actually a non-surgery or my doctor could do nothing because the endo was so widespread inside me. In between that and the fifth surgery I went on something called Depo-Lupron that makes you go into menopause. That helped me out a little while I waited for my next surgery. My last surgery was more complicated than the rest and thus I had to see a specialist who was one out of  only two doctors in PA that performed the surgery I needed. He performed a laparscopic presacral neurectomy and also did a combination of excising (cutting away) and ablation (burning away) of the endometriosis. He was fabulous and a very kind doctor who answered any and all questions my husband and I had about the surgery. Well, in February of this year I started having problems again and went back on the Lupron in May. Thank Goodness that it has helped me for about six months. I am trying to think positive but sometimes its hard with dealing with all the pain. I know God is looking out for me but I hope he leads me to a sit down job. Thank You for listening to my rant. Here is some information on endometriosis:



Endometriosis is a condition in which the tissue that normally lines the uterus (endometrium) grows in other areas of the body, causing pain, irregular bleeding, and possible infertility.

The tissue growth (implant) typically occurs in the pelvic area, outside of the uterus, on the ovaries, bowel, rectum, bladder, and the delicate lining of the pelvis. However, the implants can occur in other areas of the body, too.

The cause of endometriosis is unknown, but there are a number of theories. One suggests that the endometrial cells (loosened during menstruation) may "back up" through the fallopian tubes into the pelvis, where they implant and grow in the pelvic or abdominal cavities. This is called retrograde-menstruation.


Other theories include:

A faulty immune system causes menstrual tissue to implant and grow in areas other than the uterine lining

Cells lining the abdominal cavity may develop endometriosis

Certain families may have problems with their genes that make a woman more likely to develop endometriosis
Presacral Neurectomy is the surgical removal of the presacral plexus – the group of nerves that conducts the pain signal from the uterus to the brain.